Social Tags
Social Tags

Vision 20/20 Epilepsy Partner Organizations
This consortium of epilepsy organizations has partnered to create the HERO website


Logo American Clinical Neurophysiology Society (ACNS)

The American Clinical Neurophysiology Society (ACNS) is a professional association dedicated to fostering excellence in clinical neurophysiology and furthering the understanding of central and peripheral nervous system function in health and disease through education, research, and the provision of a forum for discussion and interaction.

www.acns.org


Logo American Epilepsy Society

The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy.

www.aesnet.org


Logo CURE (Citizens United for Research in Epilepsy)

Citizens United for Research in Epilepsy (CURE) is a nonprofit organization dedicated to finding a cure for the epilepsies by funding research and by increasing awareness of the prevalence and devastation of this disease.

www.CUREepilepsy.org


Logo Danny Did Foundation

To prevent deaths caused by seizures. We work toward this mission with these main goals in mind: advancing awareness of Sudden Unexpected Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and families afflicted by seizures; and the mainstreaming of seizure detection and prediction devices that may assist in preventing deaths caused by seizures.

www.dannydid.org


Logo Dravet Syndrome Foundation

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.

www.dravetfoundation.org


Logo Dravet.org

The mission of Dravet.org is to serve as a global patient advocate organization giving support to families, saving the lives of our children, promoting and funding medical research to find effective treatments and cures for Dravet syndrome and Dravet Spectrum Disorders. We are absolutely committed in our quest to find a cure while helping to improve the quality of life for patients and their families. Our steadfast dedication to empower families so they can take an active role in their child's care, while managing daily challenges of these disorders, is what motivates us to do more.

www.dravet.org


Logo Epilepsy Centers of Excellence, Department of Veterans Affairs

Improve the health and well being of Veteran patients with epilepsy and other seizure disorders through the integration of clinical care, research and education.

www.epilepsy.va.gov


Logo Hope for Hypothalamic Hamartomas

Providing information and support to hypothalamic hamartoma patients, caregivers, and healthcare providers and promoting research toward early detection, improved treatments, living with HH, and cure.

http://hopeforhh.org/


Logo International Foundation for CDKL5 Research

IFCR is dedicated to funding research of this rare genetic disorder, and to raise awareness amongst medical professionals and the public, while providing information, support and resources to families affected by CDKL5. Intractable epilepsy is a main symptom of CDKL5 and our mission is to alleviate this suffering by partnering with researchers and epilepsy organizations in pursuit of our common goal.

http://www.cdkl5.com/


Logo LGS (Lennox-Gastaut Syndrome) Foundation

The LGS Foundation is a non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome while raising funds for research, services and programs for individuals living with LGS and their families.

www.lgsfoundation.org


Logo My Epilepsy Story

My Epilepsy Story is an organization that is united with ONE voice, for women and children who are affected by this devastating neurological disorder, called epilepsy. We share the stories of women and children living with epilepsy and the ones that have died from epilepsy……all in an effort to find better treatment, a cure, and to increase awareness for women and children’s health.

www.MyEpilepsyStory.org


Logo National Association of Epilepsy Centers

With the goal of no seizures and no side effects, the National Association of Epilepsy Centers strives to make high quality healthcare available and affordable for epilepsy patients across the country. NAEC is a non-profit 501c6 trade association with a membership of 190 specialized epilepsy centers in the United States.

www.naec-epilepsy.org


Logo National Institute of Neurological Disorders and Stroke

The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. To accomplish this goal the NINDS supports and conducts basic, translational, and clinical research on the normal and diseased nervous system.

http://www.ninds.nih.gov/


Logo Preventing Teen Tragedy

Our passion is assisting individuals and families affected by Epilepsy and/or Mental Illness. We also interact with the community by providing support and education, training in advocacy, and increasing awareness of these illnesses. Epilepsy and mental illness are two common yet separate brain disorders that can cause isolation and stigma. These families and individuals need information and support. Our strong desire is to prevent teen and adult suicide by providing programs, support, and better cohesive teams between patients, families, clinicians, and therapists.

www.preventingteentragedy.org


Logo Seizure Tracker

Seizure Tracker is dedicated to providing people living with epilepsy and their care providers with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic therapies.

www.SeizureTracker.com


Logo The Epilepsy Foundation

The mission of the Epilepsy Foundation is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.

www.epilepsyfoundation.org


Logo The RE Children’s Project

The RE Children's Project was founded in 2010 to increase awareness regarding Rasmussen's Encephalitis (RE) for the primary purpose of supporting scientific research directed towards a cure. The organization also supports research dedicated toward the recovery process following hemispherectomy surgery, a life altering, radical brain surgery that is the only known "cure" for the disease. Since our founding we have sponsored cross-disciplinary research conferences and funded leading edge research around the globe focused on finding the cause and an eventual cure for RE.

www.rechildrens.org


Logo Tuberous Sclerosis Alliance

The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. TSC is a rare genetic disorder that causes tumors to form on vital organs and is the leading genetic cause of epilepsy and autism.

www.tsalliance.org


 


HERO - participate in a clinical trial